All the support groups below have been verified to be safe, anti-spam and are there to support those who suffer from these conditions and are looking for others to connect with.

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Hidradenitis suppurativa

  • Hidradenitis Suppurativa Support – Unique Fun Facts 
    This group is for those seeking HS Medical science facts, HS research, advice, support, to read and share experiences.

Website | Facebook group

Hidradenitis suppurativa & Phage Therapy

  • Hidradenitis Suppurativa Phage Therapy Resource 
    This group is for all patients, doctors and scientists. Everyone is welcome to share their HS/phage story, ask questions about Bacteriophage treatment with Hidradenitis Suppurativa.

Facebook group

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Phage Therapy

  • Vitalis Phage Therapy 
    Vitalis Phage Therapy is an official partner of the Eliava Therapy Centre in Tbilisi, Georgia.  It was set up after the founder, Pranav, was given the chance to recover from his multi-drug resistant infection using phage therapy. The majority of patients that contact Vitalis Phage Therapy are located in India and South Asia, however patients from all over the world can contact them to receive more information.

The Vitalis Phage Therapy can help with the following:

  • Information – Provide patients with detailed information on phage therapy.
  • Past experiences – Share the stories of other patients whom they have helped throughout the years.
  • Communication – They are the primary point of contact with the Eliava Therapy Centre.
  • Treatment guidelines – Provide patients with information on standard timelines, pre-treatment testing (by doctors recommendations) and information on phage administration.
  • Tests – Before a patient travels to Georgia, assistance with sending samples to the Eliava Therapy Centre for diagnostic tests and phage sensitivity.
  • Documentation – Assistance with visa requirements, application process and obtaining an invitation letter to travel to Georgia.

Patients may contact the Vitalis Phage Therapy directly on +91 99100 18896 or by contactus@vitalisphagetherapy.com.

Website | Twitter

Phage Therapy

  • Lydia Bakhuis 
    Lydia Bakhuis has also had experience with phage therapy. Her daughter, after suffering for 8 years, received relief after phage therapy at the Eliava Therapy Centre in Tbilisi, Georgia. After this, Lydia decided to dedicate her time towards helping others with information and guidance on phage therapy.

Lydia can help with the following:

  • She is a direct contact person with the Eliava phage therapy centre and is there to help with any enquiries or assistance.
  • Informing, advising and guiding patients throughout the entire process.
  • She makes sure that patients receive all the correct and complete information.
  • Lydia helps with sending samples, arranging appointments and finding an appropriate interpreter (if necessary) for the patient’s visit at the centre.
  • She also has an apartment and transportation that patients may opt in for.
  • For those patients that receive remote treatment, she makes sure that the phages are sent, and if needed, can translate the treatment plan.
  • She is there to help patients receive any information throughout the entire treatment process.

Patients may contact Lydia Bakhuis directly by info@fagengeorgie.nl

Website | Facebook

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